PFS Patient (male)

The world came crumbling down when I started having pins and needles in my extremities… almost like I was halfway to being paralyzed.

I seem to be suffering from PFS. I’ve been taking Propecia for 10 years now. It was originally prescribed to me by a dermatologist and refilled over the years by any doctor I saw, none of which ever mentioned any potential side effects. I first had anal pain when I was 25 and doctor said I have hemorrhoids, which I always thought was strange at such a young age. They’ve bothered me ever since. When I was 27 I started having back pain, and to this day was not able to figure out why. Doctors were stumped as all tests were fine. Throughout 2018 I started having more muscle pain: both wrists, both knees and elbows, my neck, and more. The world came crumbling down when I started having pins and needles in my extremities, which quickly turned into an overall body weakness, almost like I was halfway to being paralyzed. I went to the ER and was sent home as they couldn’t find anything wrong. I then saw multiple specialists: neurologists, rheumatologists, etc. I decided to stop taking all supplements, and for the first time since I started, Propecia. I know now stopping cold turkey was a huge mistake. 3 weeks later my crash hit me: my vision changed, I was dizzy when I closed my eyes so sleep was close to impossible, night sweats and tremors if I could sleep, severe depression and suicidal ideation, extreme fatigue, severe cognition issues, and more. I saw an Osteopath who did Cranial Manipulation Therapy who saved my life, halfway through our session my depression and suicidal thoughts were completely wiped away.

MT, 33, Los Angeles, CA: March 29, 2019

Condition update: September 2020

No improvement

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