SIDEfxHUB
Launched in 2024, SIDEfxHUB provides a safe and trusted space for sufferers of PFS and Post-SSRI Sexual Dysfunction (PSSD), along with their loved ones. Among the services offered by this UK-based patient organization is an ever-expanding network of moderated WhatsApp Peer Support Groups, where patients can freely—yet politely and respectfully—discuss anything and everything related to their condition, in hopes of advancing recovery. At present, such groups are operational in the following regions: UK, US & Canada, and Scandinavia. Additionally, SIDEfxHUB is building an online registry of patients worldwide who would like to be considered for participation in clinical research pertinent to the particular symptoms of their condition.
Moral Medicine
Since its 2023 launch, Moral Medicine has quickly become one of the loudest voices in promoting PFS awareness across the globe. That, chiefly through its YouTube channel, whose interview series with PFS patients and their loved ones, as well as with health providers warning against the dangers of finasteride, topped 500,000 views by 2025. Host Mark Millich, a former US Army sergeant who now works as a construction health-and-safety manager, was prescribed the drug in 2020 by Hims. Six months later, he developed a boatload of debilitating adverse reactions. “He woke up one day anxious, dizzy and slurring his words. Later his libido plunged, and his genitals shrank and changed shape. His doctor said the symptoms were caused by [finasteride],” wrote The Wall Street Journal of Mark’s case. In addition to raising awareness for PFS, Moral Medicine advocates for medical research on the condition, while demanding transparency and accountability from the pharmaceutical and healthcare industries.
#MeTooPropecia
PFS patients and family members who wish to share their experiences about the impact the condition has had on their lives are welcome to do so via #MeTooPropecia, a Twitter page edited by PFS patient Michael Adams of Connecticut. You can contact him at #MeTooPropecia or metoopropecia@protonmail.com.