PFS Patient (male)

I can’t remember a time when I felt happiness or joy for things I used to love.

I’m a 57 year old man and my symptoms include: sexual dysfunction (no libido), erectile dysfunction (painful erections, and if I orgasm it’s without sensation–my new normal is a-sexuality), ejaculatory disorder with little or no ejaculate, shrinking of my genitals (they’re almost non-existent, and I experience sharp testicular pain that goes up into my lower abdomen/groin area), gynecomastia (including breast pain), and migratory joint muscle pain throughout my body. I can’t carry groceries anymore because of nerve and muscle pain, it feels like splintering sensations, like my muscle tissue and nerves are shredding and ripping. Also anhedonia. I’m often lost in brain fog and listless. I can’t remember a time when I felt happiness or joy for things I used to love. I have memory issues and I’m in constant fatigue and I am always depressed with suicidal ideation becoming common. I don’t recognize my life anymore.

RM, 57, Winnipeg, Canada: July 12, 2019

Condition update: September 2020

Extremely bad

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