PFS Patient (male)

From being perfectly healthy both mentally and physically the worst nightmare I can think of started.

I started taking Propecia when I was around 19 years old, took it for 4-5 years and shortly after I quitted back in 2004, I went into the PFS “crash” over a night. From being perfectly healthy both mentally and physically the worst nightmare I can think of started. Many years of medical investigations around my symptoms started and no one ever found out what the actual cause was. It was not until 2017 actually that I randomly saw something online that later led me to the pfs foundation. After 13 years of not knowing what was wrong with me I finally had found out. When I red in the forums of people describing their symptoms I was 100% sure that this was it and the greatest mystery of my life finally came to an end. To me it has always been pure neurological side effects, never had any sexual issues that some people describe. I would say around 2007, three years after, I was recovered to maybe 60%. It slowly and gradually became better and today, 16 years later, I’m probably at around 80-90%. It varies. I have two kids and a wife today, a descent job in IT as a programmer. So it is possible to move on after all this but it has been extremely tough.

CH, 39, Stockholm, Sweden: Jan. 24, 2020

Condition update: August 2020

Considerably improved

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