PFS Patient (male)

a neurologist…diagnosed me with a slow progression of…Lou Gehrig’s Disease. I started taking finasteride in December 2011 because the facility that did my hair restoration said they wouldn’t guarantee my procedure if I didn’t take it. Although I’ve never had any sexual side effects I struggled with other side effects. Emotional side effects included large […]

Mother of Patient

He has progressed from being somewhat hopeful to being very bitter, angry and unfeeling towards everything and everyone. I’m the mother of a son with PFS. He’s 43 years old and unmarried. He’s a Navy JAG officer stationed in California. Last September he began taking Propecia and took it for 52 days before he found […]

PFS Patient (male)

But for your efforts providing hope, I probably wouldn’t be alive today. I am writing this short message to let your foundation know how important its work is to the thousands of men affected by finasteride. But for your efforts providing hope, I probably wouldn’t be alive today. Six months ago (after taking only 9 […]

Girlfriend of Patient

I’ve found draft suicide notes in his Gmail for myself, his mom and brother. My boyfriend believes that he is suffering from PFS, but we have not found a doctor who has believed him, much less been able to help him. He was taking Propecia about a year ago, briefly stopped, picked it back up […]

PFS Patient (male)

Please warn others. I started taking Finasteride for the prostate…4 weeks in I started to get slurred speech & brain fog.. Didn’t put the two together.. until nurse friend said “Have you started new medicine?” Then I stopped Finasteride.. But I was already in my eight week. Still not back to my old self….Please warn […]

PFS Patient (male)

I’m really so worried. I had no idea about PFS. I’m 21 and I’ve been on Finasteride for about 20 days for hair loss. My lips, face and head of my penis have been very dry. I haven’t been able to maintain an erection, or when I do they’re painful. I’m gonna stop taking the […]

PFS Patient (male)

if I were younger and wanted children I wouldn’t be able to father them. What is it worth to be able to have children? I was prescribed Finasteride in 2010. I took it for 3 months […] The side effects were a nightmare. First was the depression. I couldn’t shake it. I had times when […]

PFS Patient (male)

I’ve not taken Propecia for almost 11 months now. Can side effects come back even after discontinued use? I took Propecia for 17 years from the age of 17 to 35 and I stopped taking the drug after I began experiencing the sexual side effects that appear to be dangerously common. Up to that point, […]

PFS Patient (male)

Been suffering from PFS for 13 years with no improvement. Been suffering from PFS for 13 years with no improvement. Has anyone tried PRP therapy? Are there any other treatments that show promise? I’ve tried many things with zero results. One issue, among many, I have been dealing with is what I would describe as […]

PFS Patient (female)

I went from a marathon runner to not having anything in me to run. I was given finasteride from a dermatologist for hair loss in 2013. I took it for 2 weeks and felt weird and decided to get off. I had a horrible crash. Cognitive thinking was gone and memory impairment. I then noticed […]